After receiving the results of Ashlynn’s head ultrasound at 2 weeks old, Chris and I knew there was a possibility of a Cerebral Palsy diagnosis. Of course we did what any parent does when we want more info… headed straight to Google to research "PVL", which was the only diagnosis we were given at that time. [...]
"Be still, and know that I am God." - Psalm 46:10 It's been quite a journey this past year- one that I would like to share...not because I have it all figured out - not even close, but more so, if me talking about our journey helps just one person- even if it's myself, then [...]
This was a huge year for us. If I had to pick one word to summarize, it would be CHANGE. We saw a new diagnosis, the start of preschool, and a change of home (or at least, living in a transitional home). It was my first year not having my career. We had Ashlynn’s first [...]
World Cerebral Palsy Day! This day is not just to raise awareness, but also to celebrate the lives and achievements of both those living with CP and the amazing people/ organizations that support and love them. The goal of the day is to create a powerful voice for the CP community in order to enhance [...]
Last week, our beautiful Ashlynn turned one year old. I'd ask myself, "where has the time gone?" But, I know that from the nonstop chaos of this year, it’s just literally flown right by us. We’ve had a wonderful year with Ashlynn and our family. When she was born, we had so many uncertainties. We [...]
First and foremost, I have to apologize for my recent blogging absence! I have not forgotten about you all!! From now on, I will be back on schedule with some great posts that are all ready to go!! To say I got a little overwhelmed with all the recent events going on all at once [...]
Bal.anc.ing act - an action or activity that requires a delicate balance between different situations or requirements. When it comes to having time to do things, I always feel like the grass is greener. Sometimes, I'll see other moms and for example, I'll think to myself: "Wow! She has three kids, two dogs, looks great, they [...]
Pain and Fear. Two distinctly separate things. Yet, in my current season, I’ve become more aware of how they go hand –in- hand. I am afraid of pain, both physical and emotional. It’s uncomfortable. It makes me not think clearly. It makes me act in a way I don’t like. I can’t function when I am in pain. So, I [...]
It’s ok. I know the news can be shocking. I know you might not know what to say. I know what you must be thinking… only because we thought it too. What started out as a letter telling you what NOT to say, turned into a letter about why it’s ok to say exactly how [...]
